Resources & Links
PV Pod: Stories from the Marrow
BloodStream Media
The PV Pod: Stories from the Marrow is a podcast about Polycythemia Vera (PV) and is intended for patients, caregivers, providers, and the greater community of people who are impacted by PV. Each episode, The PV Pod: Stories from the Marrow strives to provide listeners with critical education, the latest scientific updates, and voices from the community.
PV-Self Advocacy Kit
Empower yourself with information to help you on your journey with polycythemia vera (PV).
A PV diagnosis can be shocking. PV is a rare disease and you’ve likely never heard of it before. With this kit, you can learn more about PV so you are better able to advocate for yourself and manage your health and potential risks-today and tomorrow.