Patient Advocacy

Our Advocacy Partners

Our strong partnerships with advocacy groups, patients and care partners drives our commitment to their fight. We are allies in their efforts to raise awareness of the burden of rare blood cancers, and share their goal of improving quality of life for those impacted by them through education and helping patients to find optimal care. These organizations are resources for patients and their families to find information and make connections to support them in their disease journeys.


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Cancer Research & Treatment Fund, Inc.

Blood Cancer United

MPN Advocacy & Education International

MPN Advocates

MPN Research Foundation

Patient Power

PV Reporter

National Organization for Rare Disorders (NORD®)

More Resources for Patients